Closing Autism Acceptance Month Amidst National Discourse  

As the nation’s leading grassroots Autism organization for more than 60 years, the Autism Society of America works every day to create connections, empowering everyone in the Autism community with the resources they need to live fully. Throughout April, Autism Acceptance Month has served as an opportunity to recognize and uplift Autistic individuals — but this year’s national discourse surrounding Autism research and policy decisions has underscored the urgency of our advocacy. In the face of sweeping announcements from federal agencies and polarizing rhetoric from public figures, we remain committed to ensuring that the diversity of experiences, and the voices of Autistic individuals and their families are centered in all decisions that affect their lives.  

Navigating Controversial Initiatives and Community Response  

April 2025 witnessed a series of announcements from Health and Human Services (HHS) Secretary Robert F. Kennedy Jr., including plans for a national Autism registry and a comprehensive research initiative aimed at identifying the causes of Autism by September.  

The proposed registry, intended to compile private medical data without explicit consent, was swiftly withdrawn following public outcry related to ethical, scientific and privacy concerns. Nonetheless, the broader research initiative persists, led by individuals like David Geier, whose past misconduct has raised questions about the study’s credibility. Statements from the Administration perpetuating discredited theories linking vaccines and Autism, contradict established scientific consensus. Additionally, definitive claims to find “environmental toxins” in an accelerated timeline, further conflicts with current science, along with the considerable cuts to Autism research and supports that have already taken shape.  

Upholding Scientific Integrity 

“Throughout April, the Autism Society of America has remained focused on cutting through confusion and centering the needs of Autistic individuals and families in the national dialogue,” states Christopher Banks, President and CEO. “As conflicting announcements emerged from HHS — first proposing an Autism research initiative that was previously stated would call for proposals, and then quietly moving forward without further details — we’ve provided steady, factual responses rooted in science and values of dignity and inclusion.”  

In addition to policy missteps, we have continued to speak out against the resurgence of harmful rhetoric that promotes long-debunked claims about the causes of Autism, including dangerous and false associations with vaccines. These statements do not reflect the scientific consensus, and they undermine years of work to build understanding, trust, and acceptance. This dangerous narrative has backpedaled on decades of progress with leaders claiming Autistic individuals are a “tragedy,” or that they “destroy families.” Not only does this perpetuate stigma, but it is dehumanizing and attacks a person’s self-worth. 

Advocacy and a United Front 

The Autism Society released multiple public statements across these developments, reiterating our long-held position: the Autism community deserves more science-based research, informed and compassionate policymaking, and greater access to quality, lifelong supports and services.  

Our President & CEO, Christopher Banks, raised these concerns in national media – including CNN, News Nation, and Politico – and in direct conversations with policymakers. Our Chief Marketing Officer, Kristyn Roth, continued to highlight the diversity of experiences and needs across the Autism spectrum – as seen in NPR, Fox News, and The Hill – and leading with dignity as opposed to deficit-based assumptions. We’ve consistently emphasized the need for clarity, transparency, and community inclusion — all of which have been missing from the process to date.  

We have collaborated with partners across the disability and research sectors, working together to monitor the trajectory of the proposed study and ensure the Autism community has a seat at the table moving forward. We hope to continue to engage more Autism and disability organizations that represent nuanced and marginalized community members, so that we can unite with a singular focus to enhance the lives of Autistic individuals and their circles of support. We will continue to request clear information from HHS and advocate for federal actions that protect civil rights and reflect input from Autistic advocates, families, professionals and experts.  

A Call for Inclusive and Ethical Progress  

“As we close this month of broader awareness, acceptance, and belonging, we urge policymakers, researchers, and the broader public to engage with the Autism community in a manner that is inclusive, respectful, and grounded in validated science,” states Banks. “The pursuit of understanding Autism must prioritize the voices and incredibly diverse experiences of those it aims to serve, ensuring that advancements do not come at the expense of individual rights and well-being.” 

The Autism Society of America remains committed to fostering a society where Autistic individuals are valued and supported – not dehumanized or defined by what they can or cannot do. We will continue to monitor developments and advocate for policies and appropriations that uphold the principles of dignity, inclusion, and scientific integrity.  

Now more than ever, we seek to unite with our peer organizations and greater disability community to display a united front as we pursue scientific progress and expansive support services for our community. 

How to Get Involved  

Our work is not possible without support. When federal systems fail, nonprofits pick up the slack. To meet the significant increase in demand that we are experiencing across our National Helpline, and affiliate network, please consider a gift of any amount to support our efforts. 

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To connect with our National Helpline, please contact us at Autism Society or call 800.3AUTISM (800.328.8476).